A parent's journey with childhood epilepsy - Sarah and Lexi скачать в хорошем качестве

A parent's journey with childhood epilepsy - Sarah and Lexi

This episode explores the emotional journey of getting an epilepsy diagnosis for children and young people. Host Kirsten McHale speaks with Sarah, who shares her personal experience as a parent navigating her daughter Lexi’s diagnosis. It’s all about sharing stories and support to help others feel less alone. IMPORTANT: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly. The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout In this episode: 00:00:00 Introduction 00:03:53 Discovering Lexi's epilepsy 00:08:04 A long diagnostic process 00:11:50 Understanding the role of an epilepsy nurse 00:15:22 Managing seizures: Emergency medication and challenges 00:18:34 Identifying night terrors vs. seizures 00:21:55 Educational Challenges 00:25:47 Epilepsy and puberty 00:29:20 Anxiety as a parent Resources: • https://www.youngepilepsy.org.uk/ • https://www.youngepilepsy.org.uk/yout... • E-Cure network: https://www.youngepilepsy.org.uk/get-... • Information about epilepsy: https://www.youngepilepsy.org.uk/abou... • First aid poster • Shout 24/7 – Text PURPLE to 85258 More info: https://www.youngepilepsy.org.uk/shout • Young Epilepsy Youth Support Services: https://www.youngepilepsy.org.uk/what... Social Media: • X: https://x.com/youngepilepsy/ • Facebook:   / youngepilepsy   • Instagram:   / youngepilepsy   • YouTube:    / youngepilepsy   • LinkedIn:   / young-epilepsy   • TikTok:   / youngepilepsy   Contact: communications@youngepilepsy.org.uk