A Conversation with an MPN Specialist: Symptom Management and Lifestyle Changes скачать в хорошем качестве

A Conversation with an MPN Specialist: Symptom Management and Lifestyle Changes

MPN Advocacy & Education International hosted a webinar with Dr. Raajit Rampal, Memorial Sloan Kettering, to discuss symptom management and answer numerous questions from the viewers. TIMESTAMPS 00:00 A Conversation with an MPN Specialist 00:51 How are symptoms being managed, generally speaking? 4:49 How do you delineate between menopause and symptoms for your women patients? 6:38 I'm afraid to have dental implants. What precautions should I be taking for a minor surgery? 8:37 Can ET cause bone lesions? 9:40 My wife is on Jakafi and continues to gain weight even on a low-carb ketogenic diet. Is this due to her metabolism, Jakafi, or her MPN? 10:58 I took Ojjaara for 9 days and my platelets dropped to critical levels. I had a severe cough and sore throat plus full body hiccups and it was recommended to lower my dose. Can Ojjaara slow the progression of MF? 12:24 Is there any medication that helps with the itching? 15:06 Can ET cause bone pain in my leg? 16:57 What is your opinion regarding switching from hydroxyurea to Pegasys or Besremi due to the possibility of altering the course of the disease? 19:38 I am suffering from depression on Besremi. What should I do? 21:51 Can you give examples of the stimulants that may help with fatigue? 22:52 Have you ever seen any twins who both have an MPN? 24:21 Can you offer any comment on the recently published study ARES trial on using low-dose aspirin twice a day versus once a day for precision anti-platelet therapy in ET? 25:52 Is there any possibility that having an MRI could replace a BMB? 27:54 Do you palpate the spleen with your patients? 29:32 My hematologist will order phlebotomy if my hematocrit or hemoglobin is elevated but not if only the red blood count is elevated. What are your thoughts? 30:41 I am a 60-year-old woman who had a hysterectomy at 50. I have been on hydrea for 18 months but for the last 6 months, I have had terrible night sweats. What can be causing this? 31:46 Are bloodshot eyes a symptom of ET or from the hydrea? 32:21 Could advances in gene technology reduce or eliminate the JAK2 mutation? 33:48 Are there any genetic tests that can be done to test for family members of someone with an MPN? 36:53 How will the current disasters in NC and Florida impact the research and patient care at MPN Centers? 39:07 What are your thoughts on inrebic and its side effects on the heart? 39:48 I have multiple non-driver mutations besides a high JAK2 VAF, what is your opinion on taking hydrea? 41:54 What drug are you more apt to prescribe if a new patient comes to you? 43:51 How influential are life stressors influential on symptoms and platelets? 44:38 Is it possible for PV to not progress? 46:48 When you have a bone marrow biopsy, is the result for that area of the bone marrow the sample was taken or is your bone marrow the same throughout your body?