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Orthostatic Intolerance and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Dr Jenny Butler, General Physician, Christchurch Hospital, for MECFS Canterbury, 9th March 2022 SLIDE LIST: 00:00 What am I going to talk about? Who I am and what I do Types of dysautonomia - POTS and Orthostatic intolerance in ME/CFS Diagnostic testing Approach to management 00:44 A bit about me 02:09 The 'Funny Turns Clinic' - Diagnoses 03:11 Tilt Testing (HUTT - Head Up Tilt Testing) 05:24 The Control Centre of the Body 06:12 'Rest and Digest' (parasympathetic) and 'Fight or Flight' (Sympathetic) 07:49 What even is Dysautonomia? 09:37 What is Orthostatic Intolerance? 10:30 Types of OI - Orthosatic Intolerance 11:51 What is POTS? Postural Orthostatic Tachychardia Syndrome 14:10 HUTT - Head Up Tilt Testing - POTS 15:20 NASA Lean Test /Poor Mans Tilt 16:10 Diagnostic Pitfalls - POTS - Underdiagnosis 17:18 Diagnostic Pitfalls - Overdiagnosis 22:07 Who gets POTS? 23:09 No-one really knows! Mixed Bag? Cause vs effect? 25:55 POTS is a Syndrome 26:48 Other forms of Orthostatic Intolerance 27:34 Othostatic Intolerance in ME/CFS 30:42 Orthostatic Inolerance and Hypermobility 31:00 Psychiatric Comorbidity? 34:10 Where does Long Covid fit in? 35:30 What other tests should be done? 36:43 Management of OI 38:22 Exercise - POTS research 40:24 Volume Expansion 43:33 Mechanical Measures 46:08 Other 47:54 Medication options 48:49 What about dietary changes? 51:09 Prognosis (POTS) 52:03 Question Time ____________________________ Bio: Jenny Butler works in acute General Medicine at Christchurch Hospital. She was always interested in syncope, with people admitted for investigation of collapse being a daily occurrence in General Medicine. She became more interested in autonomic medicine whilst doing an advanced training project on sympathetic nerve function (under the supervision of Dr Jardine) in 2008. Dr Butler has subsequently continued to work in the ‘funny turns clinic’ one afternoon per week. Particular areas of interest include tilt testing, diagnosis of ‘funny turns’ (is it a heart problem? low blood pressure? seizure? functional? something else?), management of postural hypotension and vasovagal syncope, autonomic neuropathy, and POTS (postural tachycardia syndrome). She is also interested in quality, teaching, and communication in healthcare. She works 0.7FTE at the DHB ____________________________ DISCLAIMER: Please note that MECFS Canterbury does not recommend any treatments. Any advice, either explicit or implied, is not intended to replace qualified medical advice. We do not accept any responsibility for any treatment undertaken by readers of any articles or other content, or for any error or omission in connection with any content published by us. MECFS Canterbury is not responsible for the accuracy of content that we link to. The inclusion of such links does not imply endorsement by MECFS Canterbury.