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NCCN Patient Webinar: Myeloproliferative Neoplasms (MPN)

Experts discuss how to understand a diagnosis, engage in shared decision-making, access clinical trials, manage side effects, and gather tips for navigating patient and caregiver resources and insight into living with myeloproliferative neoplasms (MPN). Topics Discussed 00:00 Welcome and introductions 02:16 Overview of myeloproliferative neoplasms (MPN) 03:49 Chronic inflammatory disorders 04:37 MPN as a spectrum of diseases 05:55 JAK-STAT mutation and different types of mutations in MPNs 07:50 Survival based on mutation 08:29 How patients get diagnosed with MPN and bone marrow biopsy 09:49 Essential thrombocytosis (ET) 11:13 ET risk assessment 13:52 Polycythemia Vera (PV) and dysregulated iron metabolism 16:22 PV risk assessment 18:06 Primary Myelofibrosis (MF) 20:47 MF risk assessment 23:25 Treatment options 24:56 Treatment landscape for ET, PV, and MF 27:34 Novel agents 29:57 Clinical trials and important considerations 36:13 Roles for pharmacists in the treatment of MPN 37:27 Education about treatment and schedules 40:47 Drug interaction review 42:43 Medication dosage adjustments 44:20 Supportive care 45:55 Medication access 48:03 Regulatory compliance 50:37 Understanding a diagnosis and telling people how you feel 54:01 Every patient is different and communicating about changes 57:20 What is patient advocacy? 1:05:14 Your rights and opportunities 1:07:16 Feeling comfortable and the power of shared decision-making Q&A Session 1:16:12 Is it unusual for my hematologist to not see me or do blood work for 6 months? 1:17:08 Does inflammation create the gene mutation or does the mutation cause the inflammation? 1:17:41 Should I worry if my doctor says that ET is not as bad as diabetes or rheumatoid arthritis? 1:18:40 Can PV be caused by a biologic for rheumatoid arthritis? 1:19:23 Do you feel that VAF is a valid biomarker for MPN disease status? 1:21:08 Is it a poor prognosis if my ET progresses? 1:22:29 How common is the overlap of MPN and MDS and are they usually treated separately? 1:23:23 I've had MF for 6 years and my hematologist thought my spleen was enlarging when he palpated. Would it be a good idea to get a more definitive measure such as an ultrasound? The Patient Webinar on Advanced and Metastatic Bladder Cancer occurred in September 2024. This program was created in conjunction with the NCCN Guidelines for Patients® for MPN: https://www.nccn.org/patientresources... The NCCN Guidelines for Patients are available to read and download for free online and via the NCCN Patient Guides for Cancer mobile app. Printed editions can be ordered from Amazon.com for a small fee. NCCN Guidelines for Patients DO NOT replace the expertise and clinical judgment of the clinician. Supporters: This webinar is supported through the NCCN Foundation and by contributions from our corporate supporters: GSK, Incyte Corporation, MorphoSys US Inc., and Sobi. __________________________________________________________ About NCCN Foundation®: NCCN FOUNDATION® is a 501(c)3 organization founded by the National Comprehensive Cancer Network® (NCCN®)—a not-for-profit alliance of leading cancer centers devoted to patient care, research, and education—to empower people living with cancer and advance oncology innovation. For more information or to make a donation, visit http://www.nccn.org/patients/foundation __________________________________________________________ About NCCN: The National Comprehensive Cancer Network® (NCCN®) is a not-for-profit alliance of leading cancer centers devoted to patient care, research, and education. NCCN is dedicated to improving and facilitating quality, effective, equitable, and accessible cancer care so all patients can live better lives. Visit https://www.nccn.org/ for more information. Subscribe to our channel: https://www.youtube.com/c/NCCNvideo?s... Connect with us! X:   / nccn   LinkedIn:   / nccn   Facebook:   / nccnorg   Instagram:   / nccnorg