Webinar: Rare Disease Spotlight | aHUS diagnosis, treatment, management | AKF скачать в хорошем качестве

Webinar: Rare Disease Spotlight | aHUS diagnosis, treatment, management | AKF

aHUS (atypical hemolytic uremic syndrome) is a rare disease that causes too many blood clots to form in your blood vessels. Because these blood clots block regular blood flow to your kidneys, your kidneys are not able to get rid of waste in your body as well as they should. Over time, your kidneys become damaged, which can lead to kidney failure. On Rare Disease Day 2022, we are bringing together nephrologist, Bradley Dixon, MD, FASN, and patient advocate, Jeff Schmidt, for a discussion on aHUS. Join the conversation to: Learn more about aHUS, how it is diagnosed, and treatment options Meet an inspiring patient advocate and hear his journey as a parent of a child with aHUS Find out what to ask your health care team Support for this educational program is provided in part by Alexion. Guest speakers: Bradley Dixon, MD, FASN Dr. Dixon is currently an Associate Professor of Pediatrics and Medicine at the University of Colorado School of Medicine and Children’s Hospital Colorado. Dr. Dixon’s clinical interests focus on complement-mediated renal diseases such as atypical hemolytic uremic syndrome. Jeff Schmidt Jeff is a member of the aHUS Alliance, a global organization that supports those affected by aHUS around the world. He has a daughter whose aHUS triggered in 2011. In 2014, he became passionate about helping the global aHUS community after learning about a teenager in Australia and a family in Canada who were trying to gain access to immunosuppressive drugs. This led to him joining the aHUS Alliance in 2015. Two things to know 1.aHUSis a genetic disease of the complement system that can affect many different organs in the body and can affect each person differently. 2.Complement-targeted medicines such as eculizumab and ravulizumabare highly effective in the treatment of aHUS, and many new options for treating aHUSare in development. Two things to do 1.If you have been diagnosed with aHUSand are not on treatment, monitor your urine for blood and protein and check your blood pressure regularly for signs of relapse. 2.Connect with other patients, families, and medical experts in the vibrant aHUSand rare disease community. There are many people within reach! Learn more from AKF at : https://www.kidneyfund.org/all-about-...