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Making It To Monday: A Conversation About Medical Trauma, Resilience, and Community скачать в хорошем качестве

Making It To Monday: A Conversation About Medical Trauma, Resilience, and Community 7 месяцев назад

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Making It To Monday: A Conversation About Medical Trauma, Resilience, and Community
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Making It To Monday: A Conversation About Medical Trauma, Resilience, and Community

For parents and caregivers of children with neurological conditions, the challenges don’t end when the medical crisis is over. The emotional impact—watching your child undergo procedures, facing an uncertain future, and managing ongoing care—can be overwhelming. Medical trauma is real, yet it is rarely acknowledged in healthcare settings. Both children and caregivers can experience anxiety, PTSD, exhaustion, and burnout, often without realizing that these are symptoms of trauma. Topics include: What is medical trauma, and how does it affect both children and caregivers? Recognizing trauma responses in both parents and children, including PTSD, anxiety, and emotional burnout. Practical tools for healing, including therapy options, self-care strategies, and trauma-informed approaches. The power of community and peer support in navigating life after a medical crisis. How parents can advocate for trauma-informed care in medical settings. About our panelists: Jennifer Nunes is a registered social worker, author, and public speaker in Greater Toronto. With over a decade of experience in clinical social work, Jennifer specializes in addressing and treating issues such as anxiety, trauma, caregiver stress, and self-esteem. She wrote Making It to Monday, an Amazon bestselling memoir that chronicles her family’s journey through her son’s medical crisis. The book promotes resilience, accessing inner strength through vulnerability, and finding joy in the chaos. Jennifer is also an active public speaker, offering workshops and seminars on caregiver advocacy and positive psychology. Camie Rodan is the mom of two beautiful children, including a 10-year-old son who had multiple perinatal strokes. After her son received a grim prognosis, Camie spent years traveling to access the best therapies and medical services to help him recover, ultimately moving across the country—from Washington, D.C., to Tennessee, and then to Southern California, where she now resides with her family. She dedicates her time to supporting other families in the disability community as the Communications Director for the International Alliance for Pediatric Stroke and co-founder of the KISS Pediatric Stroke Support Facebook group. Camie is also a school representative for her local Special Education Local Plan Area, a founder of the Special Education Parent Advisory Committee for her school district, and a graduate of an Emerging Leadership Program for disability advocates. She brings a unique and personal perspective on trauma, advocacy, and the importance of community for families living with lifelong medical conditions. Naomi D. Williams is a perfectly imperfect person on a mission to empower individuals and families to live their best life, now. As a Life Doula, she helps people navigate and process major life-altering events. Naomi believes anyone and everyone can and should lead an exceptional life. She is the proud mother of a former 26-week preemie who lives with a host of diagnoses that fall under the primary umbrella of spastic quadriplegia cerebral palsy. She uses her and her son’s past and present experiences to inform and partner with healthcare systems as they live out the consequences of not being considered a valuable member of their care team. Naomi is the author of And God Remembered Noah: A mother’s heart-opening journey through 22 weeks in the NICU. When not advocating for her family or others, you can find Naomi getting lost exploring nature or taking a deep breath on her yoga mat. Find her at exceptionalliving101.org , Noahland.Art, or LinkedIn. This Power Hour is a collaboration between the Pediatric Epilepsy Surgery Alliance, the International Alliance for Pediatric Stroke, the Child Neurology Foundation, and the Courageous Parents Network. *** Our mission is to enhance the lives of children who need neurosurgery to treat their seizures. We do this through our impactful programs, services, and research before, during, and after surgery. Info + Resources: Our website contains information, downloadable guides, videos, and evidence-based knowledge to help you navigate your child's epilepsy surgery journey. Parent Support Navigator Program: Our support navigators are trained in evidence-based peer support practices. They speak English, Spanish, French, Portuguese, Farsi, Hindi, and Malay Indonesian. Surgical Evaluation Travel Scholarship: Up to $1,000 in reimbursed travel costs for families who seek an epilepsy surgery evaluation for their child more than 50 miles from home. School Training: We help school teams understand your child's strengths and challenges after epilepsy surgery. www.epilepsysurgeryalliance.org Facebook: @PESAlliance Instagram: @pedsepilepsysurgeryalliance X: @PESAlliance #epilepsy #seizures #epilepsysurgery #epilepsyawareness #medicalmom #trauma #traumahealing #traumainformedcare

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