The Misnomer of Rare [Disease] | Michelle Berg | TEDxFargo скачать в хорошем качестве

The Misnomer of Rare [Disease] | Michelle Berg | TEDxFargo

Many hear the word rare and think unique or very few, perhaps even extraordinary. While each person with a rare disease is unique and the number of individuals affected by each rare disease are few, the totality and enormity of rare disease is tremendous. The summation of rare diseases is something that we all must comprehend as it affects everyone in some manner as one of the most significant public health issues and financial burdens, not to mention the humanitarian call for action. There is also great reason for hope in medicine brought about by learnings from research driven by the rare disease community. Michelle Berg has over 20 years of experience and leadership in the biotechnology sector. Most recently she served as President, GMP Nucleic Acids for Aldevron. Before that she served as Vice President of Patient Affairs and Community Engagement for Abeona Therapeutics, a company focused on developing novel gene and cell therapy approaches for treatment of people affected by rare diseases including Epidermolysis Bullosa, Sanfilippo syndrome, and Batten disease. Prior to that, Berg held a variety of roles with increasing reach and responsibility at Aldevron for 16 years, seeing it through several pivotal growth and expansion cycles. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx