Unlocking research opportunities: Partnering with academics webinar скачать в хорошем качестве

Unlocking research opportunities: Partnering with academics webinar

With 95% of rare diseases lacking an approved treatment, accelerating research is a top priority for many patient groups. Yet, connecting with the right academic partners is not often straightforward. There is limited awareness of rare conditions in academia, making it challenging for patient groups to know where to start, initiate conversations, and build lasting relationships with the right research teams. What will you learn in this webinar? -How academic research works and the structures that shape it -Where to find researchers working on your condition and how to connect with them -Practical ways to boost the appeal of your patient group to researchers -A real-world example of a patient group successfully partnering with academics and getting involved in research -A real-world example of an academic institution successfully partnering with patient groups in research Please see video navigation guidance below: ▬ Contents of this video ▬▬▬▬▬▬▬▬▬▬ 00:00 Introduction to the webinar 04.54 - Introduction to academic structures by Megan Burley 23.46 - Mel Dixon's story Part 1: Boosting the appeal of Cure DHDDS to researchers 32.43 - Attracting academics by Rick Thompson 44.40 - Mel Dixon's story Part 2: Finding, approaching and collaborating with academics 56.23 - The academic perspective on patient group collaborations by Laura Bermejo 01.15.41 - Q&A and wrap up _________________________________ 🔥 Visit our website: https://www.rarebeacon.org/ 💻 Register on The Resources Hub for free: https://resourceshub.rarebeacon.org/ __________________________________ Connect with us! 🤳 @RareBeacon Facebook, Instagram, LinkedIn, X (formerly Twitter)