2025 FOP Conference Australia Lisa O'Malley & Leah Terry - Episode 2 скачать в хорошем качестве

2025 FOP Conference Australia Lisa O'Malley & Leah Terry - Episode 2

2025 FOP Australia Conference - Episode 2 22nd -24th August, Holiday Inn Express Southbank, Melbourne Australia ✨ Leah is back home from the Melbourne FOP Conference, and she and Lisa haven’t stopped talking about all things FOP! Lisa joined the conference via Zoom, while Leah and family experienced it in person. From the inspiring sessions and world-class speakers, to the incredible families and friends they met along the way (including a surprise celebrity encounter 🤩). It was truly an unforgettable experience. 💚 But what is FOP? Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest, most disabling genetic conditions known to medicine, FOP causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another. 👉 Please like and share our video to help raise awareness! 💚 💬 Drop your questions in the comments — we’ll do our best to answer them and even invite other FOP experts to share more important insights in future videos. https://fopaustralia.org/fop-australi... This conference is a unique opportunity for: Health professionals to learn from international and local experts, people living with FOP and families. People living with FOP and families to connect, share, and learn Building awareness and understanding of this ultra-rare disease Check out information from the conference here: https://fopaustralia.org/2025meeting/ View the full program: https://fopaustralia.org/wp-content/u... https://www.ifopa.org https://www.facebook.com https://en.wikipedia.org/wiki/Frederi... Stay tuned for our next video for further discussion on all things FOP. 🌟Please share my videos, follow me on YouTube and on Facebook (link below) for more conversations, community advocacy and updates. I welcome anyone to reach out if you would like to have a respectful discussion about your passion or cause, whether political, social, health related, including rare diseases, or any issue that matters to you. This is an open platform for informed and respectful dialogue. Lisa O'Malley – Advocate C&YP, Foster and Kinship Carers (Independent / SA). https://www.facebook.com/profile.php?...